Our Care Advisors at the John Walton Muscular Dystrophy Research Centre are employed by the Newcastle NHS Trust.
“As a specialist regional Care Advisor, I have particular knowledge of the issues facing people living with neuromuscular conditions. My role is to provide ongoing advice, support and advocacy to patients and their families as well as training to health-care professionals. I have worked as a regional care advisor since 2006, and have a background in Social Work in Learning and Physical Disability.”
“I often see patients at a clinical appointment but we can also meet elsewhere – perhaps at home, in a hospice, at work, school or university. I am able to help for example with social care issues such as housing (including adaptations needed), education, work, benefits, transition from child to adult medical care and tribunals.”
“Of course, the education and training of professionals who work with neuromuscular patients is of paramount importance too. This helps to ensure that people receive a good service both here in clinic but also in the community. I train occupational therapists, employers, college staff, teachers and care staff where a patient lives in a care home.” Edwina Perkins, Care Advisor…