The John Walton Muscular Dystrophy Research Centre runs multidisciplinary paediatric and adult clinics for over 2500 NHS patients per year with a range of neuromuscular diseases throughout the North of England.
The main base for the children’s clinic is Newcastle General Hospital, and for adults the International Centre for Life. Paediatric clinics are also held at a range of other locations throughout the region, in conjunction with local physiotherapists and other staff. We aim to ensure that all clinics are multidisciplinary and attended by members of the team, which includes our specialist physiotherapists, specialist genetic nurses, physiotherapy technical instructor and a regional care advisor funded through the Muscular Dystrophy UK. We also have a programme of nurse-led clinics for myotonic dystrophy, with cardiological backup.
Our clinics have collaborative links with colleagues in cardiology, respiratory support, orthopaedics, neuropathology and other specialties. We welcome visiting doctors and other staff for specialised training in neuromuscular disease diagnosis and management.
The research and clinical practice pioneered by the team at the John Walton Muscular Dystrophy Reasearch Centre has contributed to a significant increase in the life expectancy of boys born with Duchenne muscular dystrophy (DMD) as well as the development of internationally recognised care and diagnostic guidelines. Our clinics are directly based on multidisciplinary clinical care for muscular dystrophy as well as the need for this to go hand in hand with research.
Dr Chiara Marini Bettolo
MRC Centre for Neuromuscular Diseases at Newcastle
Institute of Genetic Medicine