Our meeting provided an excellent opportunity for patients, academics, clinicians, patient registry curators and industry representatives, indeed all TREAT-NMD stakeholders, to get together to network and exchange ideas and learn about new areas of research and collaboration.
The meeting looked at the scientific results and achievements that TREAT-NMD-related research has contributed to, along with a session on upcoming themes of collaborative research. Additionally, there was a session to discuss the role of patients in research and related ethical questions.
To maximize the benefit of so many TREAT-NMD stakeholders being together at the same time a number of satellite meetings were organized. These included a CARE-NMD project meeting, TREAT-NMD Global Database Oversight Committee (TGDOC) meeting, TREAT-NMD Alliance Executive Committee meeting and TREAT-NMD Advisory Committee for Therapeutics (TACT) meeting.