Within the John Walton Muscular Dystrophy Research Centre is based the TREAT-NMD Alliance Secretariat whose one of the roles is to coordinate the Global Registries for DMD and SMA.
Those registries bring together all of the relevant disease specific national registries, accounting for over 12,000 genetically confirmed patients. The TREAT-NMD Global Registries are recognised as a leading source for trial planning and recruitment in these diseases at an international level. In addition, these registries can help researchers to answer questions such as how common the individual diseases are across the world and will support other activities to improve patient care, such as the assessment of care standards in different countries.
Further information about the TREAT-NMD Global Registries can be found in the registries section of the TREAT-NMD website.