Volker Straub, Zoe Laidler, Jessie Trueman, Chloe Geagan, John Dawson & Lindsay Murphy We are joining #TeamOrange to do a sponsored skydive in June to raise money for Muscular Dystrophy UK! Muscular Dystrophy UK is …
Article published on 3 March 2023
Research into rare disease from the NIHR Newcastle BRC has been highlighted as an example of pioneering work in a new report published by the government. Photo by Luke Stackpoole on Unsplash The new Rare …
Article published on 3 March 2023
After 29 years at Newcastle University, Professor Katie Bushby MD FRCP has announced her retirement as Professor of Neuromuscular Genetics from the end of May. Along with Volker Straub, Katie was one of the founding …
Article published on 24 May 2018
This year marks the 10th anniversary of Clinical Trails Open Day and so the organisers are ‘going all out’ to make it a spectacular event. The open day gives colleagues based here at the Joh …
Article published on 30 April 2018
European Reference Networks (ERNs) offer the potential to give patients and doctors across the EU access to the best expertise and timely exchange of life-saving knowledge, without having to travel to another country. We are …
Article published on 28 February 2018
28 February RARE DISEASE DAY! As Coordinators of the 24 European Reference Networks (ERNs), we stand together and united with our 900 strong members (healthcare providers) and the patient community, in the fight against rare …
Article published on 27 February 2018
We are delighted to announce that the Neuromuscular European Reference Network (EURO-NMD) has passed the final step of the evaluation process and was approved by the Board of Member States. European Reference Networks (ERN) create …
Article published on 20 December 2016
The outcome of the British EU referendum makes this a sad day for the John Walton Muscular Dystrophy Research Centre, for research and education in the UK and for British patients with rare diseases. A …
Article published on 27 July 2016
Millions of pounds have been invested in a drug development programme to help boys with a rare life-limiting disease The John Walton Muscular Dystrophy Research Centre at Newcastle University has received £4.6 million from the …
Article published on 16 March 2016
Princess Eugenie of York returned to the University, where she herself studied, to find out about the pioneering research undertaken at the John Walton Muscular Dystrophy Research Centre. Her Royal Highness met with Newcastle University’s …
Article published on 16 October 2015