No one is alone in Share4Rare. We are building a community to gather patients, carers, clinicians and researchers to join forces and make a difference in rare diseases.

The Share4Rare platform is a safe space where patients and carers can connect, share knowledge and get involved in scientific research. Rare diseases research is usually hampered by the few number of patients and geographic and language barriers.

The Share4Rare platform allows patients to get involved from anywhere in the world, connect with people like them and push together to advance research.

Project start date – January 2019
Project end date – December 2020

Funded by Horizon 2020

Coordinated by

Begonya Nafria